I got a new abortive migraine med from the doctor- zomig. I haven't tried it yet (since I've been at my grandparents and the medicine is at my house). I decided to check it out and went to the zomig website- clicked on the part for healthcare providers (you get better information that way), and found some Migraine Disability Assessment (MIDAS). Now, I'm pretty sure I got my score correctly- just add up all the number answers from questions 1-5, right?- so, according to this system, I am severely disabled by my migraines. Let's put this in perspective: according to the MIDAS, one is classified as being severely disabled by migraines if one gets a score of 21 or above. My score, on the somewhat conservative side even, was about 130.
Is there an über severely disabled?
Is there an über severely disabled?
And really, do I actually fit in that category? I can still function, for the most part- sure, I miss a lot of activities and junk, but there are people with severe disabilities that do a lot more than I do. Therefore, I don't think the level of disability can be measured by how much it causes one to miss out on activities, or any of the other things that MIDAS, in just five questions, measures.
Sure, it's quite nice- validating, I suppose, to have some measurement created by some scientist/doctor person (read:pharmaceutical company) which says my migraines really do interfere with life a good deal (I'm off the charts, even. ooh-hoo.). It's nice to know I can pull out things such as MIDAS and doctors' notes that say I'm "severely disabled" or have "severe migraines". It's nice to have those things to back me up when others, or even myself, doubt the level that migraines and such junk interfere with my life.
But do I truly identify myself as being severely disabled?
Of course not! I have met severely disabled people and it would seem, to me, an affront to them to put myself in the same class as them. It would be unseemly, presumptious, arrogant, and self-centered of me to think that my migraines are as debilitating as severe disabilities such as low-end-spectrum autism, cerebral palsy, down's, cancer, renal failure, heart disease, epilepsy, the worser-end mental disorders, crohn's, and so on. I would never presume myself to be in the same situation as people suffering from these diseases. All I can reasonably say is that I have enough experience with illness to have an at-least-somewhat-solid glimpse into what severe disability is like.