03 December 2012
to my future children
Most of my friends and family know I was in love and engaged 2 years ago. I'm not really shy about sharing this- just as, once asked, I'm not really shy about sharing most things in my life (or mind). Ironic, considering I was so shy, I used to hide behind my dad's leg when I was little. Anyways, during my engagement- particularly the beginning (while, imo, it was still pretty healthy and right)- I felt very close to God. And I felt very close to angels. And I loved my children. Not that I have any yet, but I knew I would. And I felt so close to them. When we broke up, I felt like I lost them, and in some ways, that was even harder than breaking up. Because I already loved them. Somehow, loving them helped me get through that difficult, insane, confusing, upside-down, life-spinning-out-of-control time of my life.
Fast forward to today. I feel sane, and happy. Sometimes I really miss feeling close to my children. I like who I am. I honestly continue to struggle with being happy with where I am in life (my mind tells me, do more, be more), but I know God loves me, and frankly, I love me, too. And lately I've had a lot of people tell me they love me, too. It's weird and often unexpected, but I totally appreciate it.
Anyways...
To my future children
I don't know who you are yet, but I love you. I don't have a family or a home for you yet (kinda need a husband for that), but I'm excited to have you come. Thank you for waiting for me. Thank you for being the wonderful spirits you are. Loving you motivates me to do hard things. I hope I can live healthily, so I can teach you how to be healthy. I hope I live close to Christ so I can teach you to expect His influence in your lives daily. I hope, despite my weaknesses, that you never question my commitment to the Kingdom of God. I hope you always know I love you. I hope I can teach you what it means to be emotionally healthy- just as my mother, and her mother, have taught me. I hope you love Heavenly Father, never doubt your divinity, and trust in His Plan. And lastly, I hope you know how grateful I am for you.
Thank you, Camilla, The Night Baker, for sharing your story.
22 June 2012
can't sleep, and i've never liked counting sheep
oh, and i'm not sure if this is related or not, but most physicians (and scribes) seem to be against double spacing between sentences. i've observed doctors go over my HPI and removethe double spaces. i adapt, and then remind myself that they probably didn't major in english. oh, except there is one doctor who does use them, and i get excited because then i can type the way i'm trained to-- with double spaces after my periods. except i think the habit might be wearing a little thin, because in writing this i'm havign to consciously remind myself to double space.
i flash back to that time in sixth grade when my mom, english major and all, reviewed an essay i wrote. i remember her informing me that i needed to double space between sentences. i told her my teacher didn't ask for that. she responded that it's the proper thing to do, and even if my teacher didn't ask for it, i should do it anyways. so i did. and it became a habit. and i never remember anyone else making a fuss about it during my school career, so either i learned my lesson, or no one cared. or both. but i'm glad that my mom taught me to double space.
now, if you didn't consider those previous 3 paragraphs a waste of your time, i'll just keep babbling. and if you did, but you're still reading for some reason anyways, i'll just keep babbling all the same.
so it's 3am and i can't sleep. why? a few reasons. the first being that i am a night owl by nature. even if i get into the habit of waking early, it doesn't take much at all to get me back into my night owl-y ways. second reason, work. i worked night shift recently, and then some late nights since. add that to the spring quarter being over and therefore no reason to be out of bed at 7am after working till midnight the previous night, and you have night-owlishness. on top of that, i didn't really make it to my morning classes regularly for the last two weeks of spring quarter. 'cuz my migraines started acting up.
yeah, i should have expected as much. and i'm pretty sure i know exactly what happened. you see, i registered for classes full-time. and then i started a new job. and i still tried to spend some time with family, and have a social life, and date. and go to church. i was really excited at the beginning of all this, because i feel satisfied when my life is full. when i am busily engaged in multiple good things, feel like i'm moving forward in my life, and have meaningful relationships with the people around me, i feel content. more than content, actually. i'm happy, and excited, and super grateful.
i knew before the quarter started that i should be looking for a job, and that i should be working. i recall feeling confident about going to school full-time. i was nervous about adding work to that challenge, but i knew the impression to work and go to school was an impression from my Heavenly Father. i trusted that since that was what He wanted me to do, i would be able to do it. and for a few weeks i did. honestly, if i didn't have the health problems that i do, i think i would have been able to keep it up. but that's what made me feel so grateful- i knew that there was no way without the aide of God and His angels that i could work and go to school. and truly, even just the few weeks that i did do it and stay on top of things were nothing short of miraculous, especially when juxtaposed with my academic and health histories.
but let's catch up to where i am now. the quarter's over and i still haven't finished my classes. i have an arrangement with my teachers, so there's hope, but it still makes me nervous. and i'm nervous about my future. it kind of sucks not being able to count on the long term plans i make because my health problems have a habit of never resolving and popping back up with a vengeance for months at a time at least a few times yearly. i like doing things, and i like making plans. it's hard to feel limited in my ability to do both.
oh, and there's the whole thing about wanting to get married. and have a family. i don't want to rush into anything, and indeed, i find some fulfillment from simply getting to know and befriend the single guys around me. i've been pretty happy with the state of my love life as of late. but my attitude changes a little bit when i get sick, and am subsequently cooped up for days on end (where did that expression come from anyways? when you break it down, it really doesn't mean anything... reminds me of a conversation my buddy stan and i had about the english language versus ancient languages). in these cases, i really just want someone to have at home, to cuddle with in bed while i feel like crap and my hair is a mess. and someone whom i don't have to worry about losing a chance with or dealing with those silly dating situations when i want to cancel, reschedule, or just change what we're doing for a date because i don't feel up to doing much.
and just so we're clear, i'm not saying that i'm looking for a cuddle-buddy. those are nice, i guess, but mostly useless, and confusing.
also, i'm pretty sure i just babbled about a bunch of stuff to put on my public blog which i wouldn't have if i weren't both sleep-deprived and migraining. like, my brain does weird things with migraines and pain. one of them being a lessening somewhat in inhibitions. dunno if anyone other than those super close to me would notice, but it happens. i get to the point where i do something or consider doing something and just don't have the mental energy to decide whether or not to actually do it or say it, and then i just decide that it's what i'm really thinking and if the person i'm talking to loves me, or is at least a kind reasonable person, won't judge me if it comes out sounding stupid or crazy or childish or something. because by rule i'm not stupid, childish, or crazy (technically speaking).
and i have no way to neatly sum up all of these thoughts. there's a phrase commonly used by scribes to sum up HPI's. first we say what the patient is complaining of, how long they've been experiencing it, any accompanying symptoms, risk factors or other pertinent information, and then we list a bunch of pertinent things they're not experiencing. "so-and-so complains of shortness of breath, but denies any loss of consciousness, chest pain, palpitations, nausea, or vomiting" is important to note because it indicates they're probably not having a heart attack. or "so-and-so complains of a laceration to his forearm after falling off his dirt bike, but denies any weakness, numbness, or tingling" is good to note because it indicates they probably don't have any nerve or muscle damage.
anyways.... after these things in the HPI, there are two magical phrases we use to wrap it all up. "S/he is otherwise in good health with no additional complaints" and "s/he is otherwise in her normal state of health with no additional complaints." it sums things up nicely (the latter is particularly good for people with lots of health problems who only come into the ER because they got a scratch that needs to be stitched up).
so, to sum up this post, i am otherwise in my normal state of health, with no additional complaints.
and here's a pretty picture for you to look at, just for making it to the end of this post. i got these from my dad when i had my sinus surgery back in february. pretty, eh?
30 April 2012
my mom is hilarious
Big Black Sectional Sofa / Couch - $25
SAVE BIG BLACK!!! Big Black needs a new home. It has served us well for years, but we're tossing her aside for a younger model with microfiber and color.It should be noted that my mom bought Big Black's replacement for $10 :)
The far left section of Big Black includes a reclining seat, which provides perfect comfort for watching both football and dancing with the stars. It also has put in many years of sci-fi and homework support. We have paired it nicely with both floral and striped pillows and it's always happy to keep a throw handy on a cold winter's eve. As the pictures attest, it is in pretty good shape although it is starting to show its age a bit on the most loved cushions. A couple of the back panels have small tears, but these are actually quite subtle and well hidden if against the wall (and could easily be disguised by a small strategically placed bit of black tape).
The right section includes a hide-a-bed that worked well until the "pig-pile incident" of late 2011. We thought 20-something adult children could count a bit better, but alas, The Black did sustain some damage that night. The hide-a-bed now hides well, it just doesn't un-hide to become-a-bed so well. If someone was handy and had the right sort of crow bar and patience, that could probably be remedied. However, as my husband's strengths run more toward IT and emergency response issues, and I'd rather play in the garden, we're happy to let someone else take a crack at it and help the Black regain some of her multi-purpose glory.
Big Black is actually REAL LEATHER on the front/facing cushions (we think the back may be "leatherette" or some similar cowhide imposter), which disguises a million faux and real paw prints and cleans up beautifully with a few clorox wipes and a vacuum hose attachment. It comes in three sections. The bed section is fairly bulky and heavy. The others are just bulky. So you'll probably need two people who can lift and maneuver well.
Not bad for $25, eh? We might even consider "OBO" as well if it meant the Black would be truly appreciated and well cared for.
p.s. We're hoping Big Black will go on Saturday so as to avoid an awkward encounter with her replacement. Please text 206-555-5555 to Save Big Black.
20 December 2011
The Guyana Journal... Post #1
Note: some of the more personal, spiritual, and irrelevant entries will be withheld from these posts (indicated by a "..." or "[ ]" to sum up what I've taken out)
| dr fred doing what we all tried to do chance we got- exactly one week from this entry |
20 October 2011
"here we are and here we will stay"
God has appointed this place for the gathering of his saints... Those who stop here and are faithful to God and his people will make more money and get richer than you that run after the god of this world.... We have been kicked out of the frying pan into the fire, out of the fire into the middle of the floor, and here we are and here we will stay. God has shown me that this is the spot to locate his people, and here is where they will prosper; he will temper the elements for the good of his Saints; he will rebuke the frost and the sterility of the soil, and the land shall become fruitful. Brethren, go to now, and plant out your fruit seeds. . . .
...thou shalt go at the head of them down into the valley which is northward. And there will I meet thee, and I will go before thee into a land which is choice above all the lands of the earth. And there will I bless thee and thy seed, and raise up unto me of thy seed, and of the seed of thy brother, and they who shall go with thee, a great nation. And there shall be none greater than the nation which I will raise up unto me of thy seed, upon all the face of the earth. And thus I will do unto thee because this long time ye have cried unto me.
- An account of the awesome life of Brigham Young is found here and here.
- "Our Very Survival", a neat talk on prophets given by Elder Kevin R Duncan.
- The speech, "These Noble Pioneers" (by the prophet Gordon B Hinckley) where this quote and the story surrounding it can be found in entirety.
- "Christopher Columbus: Inspired Seaman". Written for children.
14 October 2011
that's right. i'm a sage.
mission accomplishment before personal safety
And see that all these things are done in wisdom and order; for it is not requisite that a man should run faster than he has strength. And again, it is expedient that he should be diligent, that thereby he might win the prize; therefore, all things must be done in order. (Mosiah 4:27)
18 June 2008
backwards superstition, hearts, and some other thoughts
It's hard to believe it. It seems ike it's been such a long time... and yet a year really is quite short. I am an age she will never be. I have done, and will continue to do things, she will never do.
Perhaps there is a goal in life to see how much of our hearts we can give away. What good does our own heart do the world if we keep it to ourselves? But if we give pieces of it to different people, then when we part ways, those people still carry a part of our hearts. We may feel a pain at that piece being carried far away, but it would be good to remember also that we ourselves recieve portions of other peoples' hearts in return... perhaps with those pieces we are given, we can reconstruct our own, so that our heart becomes a patchwork quilt of the lives we have touched and have been touched by.
That idea sounds good to me. It sounds somewhat romantic, and probably a bit silly. Nonetheless, I like it.
I do not hurt for Roo herself-- she is happy, I am sure-- but rather I hurt for the missing of her. For the time I have spent and will have to spend without her. She has a sizeable chunk of my heart. In return, however, she has nestled herself a tender spot in mine.
That is how it should be, I think. By the end of our lives, our hearts will reflect so much about us. The condition of our hearts will reflect the choices we've made. I think also, though, that how much of our hearts we have given away will be important. And we will hold very dearly (treasure) the pieces of other peoples' hearts given to us.
So, what do you call this day? An anniversary of death? But I recognize it to celebrate a life...
Last Friday was the 7th anniversary of Roo's bone marrow transplant. She recieved the transplant in June of the year 2000 on Friday the 13th. She did things her own way, and where Friday the 13th was concerned, she was superstitious backwards: she considered it a lucky day. That specific day was definately a special one, with a solid miracle.
I wanted to do something special on these days, to remember Roo by. Well, I had a Red Cross appointment today to start volunteering... does that count? Eh, I don't think so much. However, a week from this Friday I'll job shadow at Children's in the oncology ward. So it's not on the 13th or 18th- it's coming up, and I'm excited. I just hope I won't get emotional or anything. I did fine in the Ped's ICU... but then again, I didn't interact much with kids that reminded me of Roo. We'll see how it goes. And-- if I come home at the end of the day and bawl, that's just fine. Every once in a while, a good bawl is called for. I think it has something to do with the heart.
So, Roo... here are some thoughts for you. Thank you for being a sister to me. Thank you for teaching me. Thank you for your patience with me. Understanding, sympathy, and empathy. Thank you for sharing your thoughts, beliefs, feelings, and most of all- your heart-, with me. Thank you for helping me to grow. And thank you for the mark you left on me which will be with me throughout the entire rest of my life. In this way, you are still in my life, and I in yours, I'm sure. I pray for you often, and think of you even more. I hope for your happiness, and for the happiness of those dear to you. You continue to be an amazing example to me, and a cherished friend.
God be with you till we meet again. :)
Love,
~Cassanndre
04 May 2008
i love my little sister
So, my youngest sister is ten years old and, as anyone who knows me well knows, annoys the heck out of me regularly (actually, that's not true, because if she really had "annoyed the heck" out of me, i would "have no more disposition to do evil"...). Despite this, I do acknowledge that the girl has a gift for saying beautiful prayers.
Today's prayer on dinner was... well... I just give you the highlights:
"We thank thee for this beautiful family which thou hast created and for the love we've built and have for each other..." (absolutely beautiful- I totally agree with her gratitude in that!)
a few sentences later came:
"...and please bless the ill that they may be a little ill, but not die..."
Do you think God will forgive me for my barely contained and irreverent laughter?
24 February 2008
this feeling is peace
This morning I struggled. I knew I needed to feel the Spirit. I needed the guidance and comfort. I was feeling anxious, and just couldn't shake the feeling. Anxiety has a way of clouding one's mind. It keeps out comfort, guidance, enlightenment- all things that would offer peace. I took my mom up on her offer to take a xenox- not something I do regularly, mind you, but I believe I was having a bit of a panic attack, and in the interest of getting the anxiety enough out of the way for me to be able to accept the peace that Heavenly Father can give, I decided it was worth it.
Church is wonderful. The atmosphere, people, and sense of community are a part of that, but even more- the gospel truths being taught at church are wonderful. The guidance and comfort that can be obtained there are nothing short of amazing. I absolutely love how it causes me to refocus on the important things, and, more specifically, on truths.
Eternal truths are another amazing thing. To think that behind the endless expanse that is the universe, there exist orders and laws that govern not only the motion of the planets, but provide a means to pure and eternal happiness- what joy! What sweet and wonderful, blissful joy.
Just as breathtaking is the fact that we, dust of the Earth that we are, can know and reap the blessings of these truths. Our loving Father in Heaven speaks to us today through prophets so that we may know the truths necessary to our eternal salvation, progression and happiness. I am nothing short of amazed and grateful.
On a more personal note, my parents are wonderful. Sure, I disagree with them about some things (media preferences &c), I may roll my eyes at them from time to time (and sometimes may even be almost justified in it), but when it comes down to it, they are nothing short of amazing, admirable, spiritual, and loving people. They are parents I am glad and grateful to have. Their testimonies, their common sense, ability to teach and lead our family, and their love leaves me with a smile on my face, tears in my eyes, and a sappy warm feeling in my heart. I watch them handle the critical things, and find them not wanting, but excelling. In that- what I think the most necessary parental quality next only to love- I hope to emulate them. For that, I am grateful to them.
Isn't peace an interesting thing? I woke up this morning feeling anxious, and probably got to the point where I was suffering a mild panic attack. None of the things that caused me anxiety this morning have been resolved. Despite this, I feel peace- a quiet reassurance that everything will be alright and I need not worry so much, but trust in my Father.
All may not be right with the world, but I am at peace with it.
01 February 2008
and my body lived happily ever after... but not yet
I had my future all planned out when I was ten years old. I would graduate from high school with straight A’s and go on to the university my parents attended. I would graduate with honors, probably in “cat behaviorology”. I would then serve a mission for my church. Help troubled kitties. Get married. And maybe go on to cure cancer. I have since discovered that life rarely goes according to plan.
It was discovered in my eighth grade year that I struggled with both depression and anxiety. With the help of my mother, psychologist and medication, I learned how to assess my emotions and thoughts, to recognize those influenced by depression/anxiety, and slowly I was able to replace negative thought patterns with positive and healthy ones. I now consider my depression and anxiety to be under control. Neither bothers me frequently, and when one does I am able to recognize what is happening quickly and deal with it in an efficient and effective manner. As a result of this experience, I was able to relate to and help when people I knew struggle with mental illness.
It would seem that gaining an understanding of mental illness was not the only empathetic quality I was bound to develop. The spring of my sophomore year (2006) I began to be physically ill. I missed more and more school and extracurricular activities due to stomach pains, headaches, nausea, weakness, fatigue and other such vague but irritatingly interfering symptoms. My mother and I began to trot from doctor to doctor, trying to pin down a diagnosis. Multiple tests, scans, appointments and a few months later I was diagnosed with Irritable Bowel Syndrome (IBS). I was shocked. Pleased to have a diagnosis. Ecstatic that there was treatment. And comforted that all I endured was real and treatable- not just my imagination. I followed not quite, but almost, religiously my treatment routine, educated myself exhaustively on the functional disorder, and found my body back to nearly normal within the next few months (barring the occasional flare-up of symptoms).
I gained empathy for those suffering with chronic illness, for those who live with the fear that accompanies a “mystery diagnosis”, and for those whose lives consisted of medical appointments. I also developed a strong awareness of and gratitude for my health. I was more than ready to bounce back into challenging course loads at school, and busy days due to multiple extracurriculars. I was ready to move on, utilizing my new wisdom, and live my life just like all of the other over-achievers my age.
The spring of my junior year (2007) marked the beginning in a chronic change of health which made my experience the year prior seem a simple warm-up exercise. My IBS flared up. Medicine was adjusted and the IBS was placated. Left in its wake, however, were severe and frequent headaches which rendered me, once again, frequently absent from school and other activities. A few tests and many Excedrin later I was diagnosed with migraine headaches. Severe. Chronic. And really annoying. More difficulties ensued when I began to have difficulty keeping solid foods down. Suspected medications were eliminated, but did not result in an abatement of my symptoms. More tests were run. More doctors’ appointments. More medicines. It didn’t take long for me to realize that perhaps the Fates (or God) had in mind a different course for me than I had ever imagined or planned; and a few lessons to learn along the way.
I like to plan. I make lists. I get excited. It has been quite a shock to me to have my carefully formulated planning completely usurped. After my second round of illness (spring 2007), I decided that it might be a good idea to work on being more flexible. Since then, I have had to constantly readjust, reevaluate, and even sometimes abandon my plans due to illness. It’s stressful. It’s terrifying. It’s just plain annoying. Being forced to do this, though, has helped me to learn a critical lesson. I have learned to be humble and to trust in my Heavenly Father’s plan for me. I have had to surrender my desires, goals, and plans to His for me. It is an ongoing struggle to remember to do this and have faith. But it gets easier. I have seen seemingly impossible situations turn out not just fine, but wonderfully.
Another struggle has been restructuring how I measure my own self-worth. I used to be pleased with who I was and how I was doing in life based on my challenging course load and numerous extracurricular activities. The busier I was, and the more I accomplished, the better I felt about myself. Having developed a chronic illness, I can no longer maintain even a normal course load, and have had to drop most of my extracurriculars. I am so far from busy as to feel, at times, isolated from anything outside of my own home. This has been one of the hardest things about being sick for me. I love to be active, to challenge myself, and to help people. I have, out of necessity, been forced to learn that my value, or self-worth, is not based on what I have accomplished nor how busy I am, but rather, who I have become and who I am becoming.
My parents have instilled in me a strong sense of obligation to serve. Since my migraines began, I have constantly struggled to not “beat myself over the head” for not being able to serve as I would like. I do my best now to serve when and where I can as my body allows, but what I work to remember is that I am learning and growing a lot from this experience, and that when I have my health under control once more, I will be able to use that wisdom to help people in ways I would never have been able to without this trial.
Illness, in any form, is not by any stretch of the imagination pleasurable. My doctors and I continue to try and straighten out my health through trial, error, and brute determination. I continue to work on juggling life with health. Nonetheless, I would not trade my experiences with it.
I have been blessed in many ways which help me to keep going. I have received assistance from wonderful people ranging from health care providers to my everyday peers. My pharmacist, doctors and their nurses have gone above and beyond to help me out. The Disability Support Services staff at my community college has been a vital asset to any attempt I have made at school since my migraines began. Teachers have gone above the legal requirement of my Letters of Accommodation in being not only flexible but sympathetic and accessible. My high school counselor has been nothing short of amazing in the aid and direction he has provided me. My family, friends, and fellow church members have served me in countless ways, allowing me frequent reminders of the love given me which I have to be grateful for.
The most valuable blessing I have received from this trial, however, has been an increased ability to help others. What I have struggled with is by no means as disabling as what I have seen others struggle with, but it has given me a solid glimpse and firm understanding of what people with more troubling problems experience. My wish is that what I am learning now will allow me to someday render service similar to what I have received. Being able to do so would make all that I have endured valuable, precious, and ultimately- worth it.
14 January 2008
thoughts for today
I think the new anti-emetic might be working. It's called Ondansetron (Zofran), and I was grateful that the insurance was willing to pay for it. Apparently it's expensive and they don't like to cover it unless you have cancer or have tried a bunch of anti-emetics already. I haven't been eating much, still, but I think it's still about the same as it has been for awhile now. Since the end of the holidays I have been eating less and less sweets- trying to avoid them, for the most part, and that seems to be very good for me. I think all this is why it's been over a week since I last threw up- yay!! Maybe it'll continue- that'd be nice-, but I have a suspicion that it won't. That might just be nerves talking, which may just result in a sort of self-fulfilling prophecy. Oh well, we'll wait and see....
Migraine medicine is less promising. We just upped my Verapamil from 120 2x/day to 120/morning and 240/night. I am still trying Zomig, and it seems like it works... sometimes. I don't know, it's hard to tell. I'll give it a couple more weeks to see. I think, though, that it works slightly better than the Amerge, but not as well as is ideal. There's one triptan left for me to try, and then I don't know what if we have to try more.... The doctor talked about prescribing Prednisone again to "break the cycle", but after hearing about how it made me anxious the last two times around decided not to (I think also because I was kind of wishy-washy on how well it worked). She said it was good that I'm doing yoga, and told me to do it 3x a week. This should help with my baseline tension-headaches. Sounds good to me.
I like yoga. I like how it stretches out my muscles. How it is relaxing and meditative. How it makes me more "aware" of my body. I like how it helps with my nausea, and even how it stimulates my digestive system (ie- relieves, somewhat, my constipation; though the resulting flatulence can be a bit embarrassing in class if I'm not careful). I think I even like how it is a bit cheesy and makes me laugh to myself as I think about things like happy babies, planks, cats, dogs, fire hydrants, corpses...
I'm working on discovering a study method that works for me. So far I've decided on two things. I need to minimize the amount of time I spend with my neck bent down (the sub-occipital trigger point gets to me), and I need to be aware of my mental status. If my thinking starts to get cloudy, then I should stop and do something that doesn't involve a lot of thinking, or rest, and then come back later. I won't get anywhere with cloudy thinking and it's better to just go and take care of it then to allow it to continue and frustrate me.
It's been difficult to get back into the swing of studying. I really quite have gotten out of it- starting last spring when I got sick. It's been eve more difficult to get back into the habit of studying and doing homework because I'm still sick. Hopefully I'll learn more about what works for me for studying, and develop some more self-discipline along the way (I'm smart enough to realise that I lack some). It's difficult, but I just have to remind myself to keep trying and learning and growing; and to not beat myself up too much when I struggle.
There was a fireside last Friday and Elder Bednar of the qourum of the twelve apostles came. It was an amazing fireside. He and Elder Merrill of the seventy conducted a Q&A fireside which turned out very well, despite most of us thinking he was a bit loony for trying to get us to ask him questions. I think my two favorite things about the fireside were when I asked him a question, and when he bore his testimony at the end. After I had asked my question and sat back down, he deferred to Elder Merrill to answer it, then answered it himself. I'd like to say that it is a very strange experience to have two people with such authority looking straight at you. That was something. Then, when he bore his testimony, it was interesting how when he said "I witness..." that he was using the word "witness" in a way that not many people can. Most of us use it as synonymous for things like "bear my testimony", "believe", and "know". The way Elder Bednar said it, one could tell that not only was he bearing witness of the gospel, but he himself is a witness. That was something. Amazing. The power and authority that backed his statements were quite evident. The leaders of this Church are called by our Father in Heaven. It's amazing.
06 January 2008
here nor there? be here
Friend just told me (via internet) to "lemme know how I can help you!". I began a reply and a couple paragraphs into it, realized it was going to be a bit long, but I liked where I was going, so decided to continue and that I would post it here when I was done. Here it is:
and... Thank you! It gets sucky when I have to spend more time at home, and then passing sucky when people doubt (the severity of) my illness, and thereby question my character. ([Friend] mentioned to me that "people are starting to talk"... that was pleasant (sarcasm), and somewhat diminished my looking-forward to seminary, and I miss that place!!)
I guess what it is is that some days, especially those when I feel above averagely unwell and miss out on things, I just feel like I'm becoming isolated from people that live even just 5 minutes away from me. I've gone from seeing most of the people I care about almost every day- even multiple times a day- to once or twice a week, if I'm feeling up to it. At a time when emotional support and connection with my friends is most needed, it had become the hardest to get. My parents are really stressed out, and so [Step-Dad] isn't always able to be as understanding as I would like him to be, and my Mom doesn't always have the energy to help me out when I'm scared, stressed, or just sick.
I've been slacking on the "basics"- things like scriptures and prayer- when I need to be devoting more time to them. I know there is a lot of strength to be gained from them, but sometimes I'm just too tired to get up the motivation for it. I think I do well at having heartfelt prayers, but I need to have them more than just once a day, and to give more time to them. Gospel study is especially important, especially with me not being able to go to seminary or institute most of the time- I have a deficit to make up for.
I remember talking to someone my freshman or early-sophmore year, (I can't recall who it was) and saying something to the effect that if I were ever to get sick, my friends wouldn't let me get isolated. I had somewhat of an idealistic image of people rallying around me, and going out of their way to be supportive.
I don't doubt in my friends' ability to do this, nor do I doubt their good intentions and love, but I must realize that my previous idea was unrealistic. I have to alter that idea- if I were to have a severe, acute problem (such as might land me in the hospital), I am confident that my friends and community (I speak of the church and family community- which are pretty much the same thing) would rally around me and my family and be amazingly supportive, helpful, and well-intentioned. I have seen them do such before for other people.
It's different, however, when one descends slowly into bad health. There is no message that makes its way around the community- "So-and-so is not doing well and needs some extra love!" There is no sudden resection from all facets of life. The resection is gradual, and by the time people realize what has happened, they have become accustomed to it. There is no internal burn to go aid the person, to reach out. With a chronic illness, the aid is continually needed, and people- despite their best intentions and truly good natures- burn out, get lazy, busy, or simply distracted.
The world moves on- rapidly, radically, constantly- as the chronic illness sufferer fights the pull of isolation. The threads that tie one to society begin fray, sometimes even snapping, and the person can be left more and more isolated as the world moves more and more forward.
I know there is a way to fight this impending isolation, but I'm not sure what it is. Sometimes I even doubt that I would even have the energy to fight. It's tempting to just sit back and let the threads snap.
Despite this, I have decided to not give in to the loneliness. I will pick the threads that matter most- my God, my family, my dear friends, and my future- and devote my energy to maintaining and strengthening those. Let the other, lesser threads to the world, to life, fray and snap. I may yearn- and even cry- for them, but I can survive- happily even- without them.
You want to know how you can help? What would mean the most to me would be helping me to not become isolated. I am afraid of it. I am afraid that it will happen, and I may not even be able to stop it. Call me when you're thinking of me. Invite me to do things- even if you know I probably can't. Keep me updated and informed on the things I miss. Drop me an email, or a message on facebook. Read my blog and leave a comment. Take pictures for me. Stick up for me. Stop by randomly- just to say hi and maybe even hang out. You're always welcome, and will always be recieved with gratitude (just don't have very high expectations on the state of the house ;D). Advise me, counsel me, listen to me, love me. Most of all- don't just "be there" for me, because I can't always be wherever "there" is. Please- be HERE for me.
05 January 2008
puke n' plunge
Plunge, plunge, plunge. Stop! Puke, puke. Breath. Plunge, plunge, plunge. Stop! Gag, gag, gag, puke! (repeat)
Really, I think I have a new rap song in the making... (don't you think it's catchy?)
And then you come out of the bathroom with your garbage can and proceed quite quickly to your bedroom for some peace, while the exchange student looks at you in surprise.
No doubt Little Sister has told him what you're probably doing by now. And how often it happens. And she probably doesn't even have the sense or knowledge to explain it so that it doesn't sound like you're bulimic.
Great. Guess I'll have some damage control to do.
It's passing unpleasant, I tell you.
If it were further in the past than this morning, I'm quite positive I'd be laughing about it. Go ahead and laugh- you have my permission.
30 December 2007
like two little old ladies
"No."
"Oh well, you're not gonna get dinner, d'you want us to bring you back a burger?"
"No thanks. I'm fine."
"Y'sure?"
"Yeah."
"Well, okay... In case you get hungry, there's some Kibbles in the dog bowl, and treats in that basket over there," he points to the basket filled with pupperoni and pigs' ears. "And there's mashed potatoes in the fridge. They're a week old, but still good." Of course he would offer up the mashed potatoes- he's had them four times this week and is thoroughly sick of them!
"OK, I'll keep that in mind."
Enters Grandma.
"Are you cold?"
"No, I'm fine."
"Well, sometimes the house doesn't heat up very well. Especially at night, we always turn the fireplace on then."
"Grandma," Grandpa interrupts, "She's not cold."
"Well she might be." Granma turns to me, "Do you want me to turn the fireplace on?"
"I'm alright," I respond, smiling.
"Well, I'll go turn it on..."
"She's not cold, Sonya," Grandpa interjects.
"She might get cold."
"She's wearing a short-sleeved shirt and said she's not." He turns to me and says knowingly, "You don't get to decide when you get cold. Grandma decides."
Grandma turns back to me, "Do you want me to turn it on?"
I grin and tell her the truth, again- "I don't care."
"Just leave it off, Sonya."
"Well... alright," she concedes. Grandma walks to the pantry. "Are you hungry?" And she begins to list off the things I could eat.
"I'm fine. I'll find something. I'm really not very hungry."
"Well, this," She pulls out some concoction in a bag, "is really easy to cook, so you can have that if you get hungry."
I start laughing.
"She's not hungry, Sonya. Just leave her alone and let's go."
"Alright, Roger," she says and rolls her eyes. Before she leaves the room, a red stick pops in front of my face. "Do you like twizzlers?" I think, kind of, but not really, but don't say anything and opt for just shrugging while I laugh some more.
"She doesn't want it, Grandma. Leave the girl alone."
"Oh, alright." She rolls her eyes at Grandpa again, but the red thing disappears. "Well, I'm going to have one."
"Alright. Let's go." He turns to me. "Don't break the laptop. You break it you buy it. And if I find any viruses or porn on there, you're in trouble. Unless it's good porn, then I'll just copy it over to my favorites."
Grandma rolls her eyes again, but manages to give him a good deal of patience. "Come on, Roger, we've got to go."
It takes me a few minutes to stop laughing. I can't help but think that they are just like two little old ladies.
I love my grandparents.
23 November 2007
we thank thee for this pumpkin pie and eggnog
Thanksgiving yesterday was lovely. I was, I admit, worried that everyone wouldn't get along, or at the very least, that things would be kind of tense.
It wasn't. Everyone got along and by the time we'd all been there for an hour, I was sufficiently relaxed and not worrying. Yay happy goodness!
I got to see my friend Anne yesterday, and found myself wishing that I kept up on my sign language more. I don't think I am any worse than I was last I saw her (about a year ago), but I am no better, and that is the frustrating part. (The fact that I was w/out glasses becasue they broke a month ago was hindering me as well lol. Could you fingerspell that again while I remember to squint?)
Communication. It is at the base of everything.
Interactions between people: words, sentences, talking, writing, eye rolling, shoulder shrugging, arm crossing, hugging, kissing, smiling, frowning, standing close, standing apart, sitting, shuddering...
Interactions between animals: meowing, barking, squeaking, growling, rubbing, licking, "marking"...
And then, even between inanimate things-
gravity's pull, electromagnetism, our own body systems: negative and positive feedback loops, hormones, cellular transport-- DNA and RNA being at the base of it all, controlling how the body communicates inside of itself and with its external environment (I think of homeostasis)...
molecules! atoms! atomic particles...
All of these things interact with one another, are joined or connected, convey, transmit... Communication-in one form or another- is critically important to this world. It is the base of life and order. Without it, everything would fall to chaos.
- transmit information ;
- transmit thoughts or feelings;
- convey: transfer to another;
- join or connect;
- be in verbal contact; interchange information or ideas;
(from here)
I wish I could communicate better with Anne. I wish I could touch deeper subjects with her- ask her about being Deaf, about her family, about her work, about people... I wish I could get her opinions on these things. I am skilled enough with my ASL to be able to conversation and to relay necessary messages. I am nowhere near skilled enough with it to be able to become acquainted with someone intimately- as I wish I could with Anne.
I'll have to exercise my ASL more.
I used to- so much more than I do. I still sign words here and there when I talk. I still have signs pop up in my head instead of words. But I don't, as I used to, practice. I would sit there and practice signs in my head. I would have a thought- and think of how I could best convey that thought in ASL. I would sometimes sign it to myself. I would sign songs while I listened to them (I still do that one from time to time). I would have, what seemed to me, very proficient and in-depth conversations with myself in sign language. (Yes, feel free to laugh at me. I am.) I can be quite comfortable signing things out... when I'm alone or with people less than or equal to my signing ability. Isn't it interesting how being around someone more proficient than myself causes me to doubt myself just enough that I loose some of my proficiency? (or, we could replace for that last word: confidence.)
I should work on that. I think I could converse with a little more ease about much more than just movies and food if I could over that.
Also, on my mind, is my health. Well, more specifically, my nausea. (Those who have weak stomachs/low tolerance for more in depth body discussions, would do well to stop here. Skip over. I'll let you know if/when it's safe again.)
I am a bit picky about where and when I throw up. Mostly because, I suppose, I am a bit self-concious about the whole thing. I don't want people to hear me, and aside from my immediate family and very very closest friends, I don't want people to know I am throwing up. Yes, I discuss it with relative easy, but it's much easier said than done (in more ways than one, actually).
At home, my family can tell when I'm throwing up not because of the duration of my bathroom-bonding, but because I turn on the fan. I don't really care much for the fan- I hardly ever turn it on after I shower- but I find it highly useful to helping me to feel.... I don't. Secure? Enough to proceed with my vomiting.
I have, at times, vomited in garbages because I figured they afforded me more privacy.
At seminary. We all know those girls who spend more time than they should in the bathroom, primping themselves for the day (we have, most of us girls, probably been one of them a time or two)- skipping class. Well, I usually don't care, aside from to roll my eyes... but I would like to add that the bathrooms at the church building where I have seminary are kinda small. And I'm friends with some of those girls. And they're really nice, decent people. So if I go in and start vomiting, it's different than it would be even at school because they will be concerned enough to ask me, multiple times, if I'm okay. And they'll actually be concerned about it- not just "oh no, someone's throwing up" but "oh no! cassanndre's sick! i hope she's okay..." I honestly, do not like the attention. (Even aside from the fact that I hope they're not all secretly wondering if I'm bulimic...)
Becuase of that, I have a new routine for when I have to vomit at seminary. I walk all the way around to the opposite side of the building- to the foyer where no one is. Then, grabbing the little garbage can from that foyer, I head outside- grab a twig to keep the door from closing all the way, set my garbage can down off to the side of the door (where passing people will be less likely to see me) and then proceed to doing my business. Bring the garbage can back in, go to the bathroom and wash my hands, go back to class.
Throwing up without worrying about anyone hearing me. Yay.
Except for the one time that were two friends of mine in that foyer. That was uncomfortable. They looked at me funny, asked if I was okay (I thought- wow! I actually look how I feel for once, apparently.), looked at me funny again as I grabbed my garbage can, explained I was going to go throw up and I'd be back (if the nausea had been any amount less, I would have turned around and just tolerated it until I got another chance later to throw up). That was fun. Thankfully, they had the good grace enough to not say much when I came back. I laughed a bit and joked about how I hoped that no one thought I was bulimic or anything- I just have health problems. (Yes, that's my way to make sure no one thinks I have an eating disorder.) I then went back to class. That was that.
Public places... I go to throw up in the school bathroom, but dangit, there's always a bunch of girls in there, so I either have to temper my throwing up (which leaves me still nauseous and with more coming later, undoubtedly) so they won't hear me, or wait until they vacate the place, or just go on with it as I would, hoping for enough toilet flushes, hand washing, and paper towel dispensing form them all that they won't hear me too much.
Being in public places with friends... ha. I remember coming out of a movie a couple times having to throw up. Excused myself to use the restroom (got someone to hold my purse for me once), and spent my fair time in there- grateful to friends who waited for me. Coming out, I'm sure I didn't look well- in fact, I even got the sympathetic look (more on that later, perhaps) from those who know me well enough to realize that I was probably throwing up. Some quiet are you okay?s came from those people as well. The funniest, though, I have to say, was when Derek was joking afterwards and asked if I had to throw up or something. I was taken aback, and still am not sure if he knew he was right, but I responded as nonchalantly as I could, "actually I was". Silence. Change of subject. I laughed inwardly.
(Okay, weak of stomach, 'tis safe again.)
The sympathetic look. Even though I don't like the attention being drawn to me while I'm not feeling well, I do really really appreciate my friends' concern. I appreciate it when I've told them that I'd be okay- go have fun- and they did. I appreciated it when one dear friend out of them all would stay behind with me and just sit with me, talk to me, while the rest of them went off as I wished they would. I appreciated it when, after having some more fun, the rest of my friends came back a bit earlier than normal so they could check on me, and decided to leave a bit earlier than normal on my account- but let me think that it was because they all got tired just a bit early. I appreciate the friend who I can call up when I feel like crap, and who will just talk to me about anything to distract me. I appreciate the friend who recognizes when I am really really not feeling well and makes sure to let me know I am cared about- without drawing everyone else's attention to me. I appreciate those who can tell, in one second, what everyone else can't. I appreciate those who respect me and understand when I don't want extra attention, and when I both want and need it, give it (sometimes without even being asked). I appreciate those who keep in touch. Who call me and invite me to hang out or go do something, even when they know I may not be able to, but make the effort just the same- reminding me that they still want me around. I appreciate those who are willing to just hang out at my house (or sometimes theirs) instead of doing something more- because they know that I'm too worn out. I appreciate those who ask me what I need from them, and then try to do it. I appreciate those who help me to remember that it'll all be okay, that I have the ability to endure it all and come out the better for it. Those who understand that I have to miss out on things, and rearrange things, and don't judge me for it. I appreciate those who listen to me complain and vent, and then help me to find my optimistic outlook again.
I appreciate this opportunity to see just how wonderful my friends are.


